Unraveling the Threads of Invisible Illnesses with Olivia

My Spoonie Sisters

As your host, Jen, I've witnessed firsthand the transformative power of getting the right diagnosis - it's a journey that can be as tumultuous as it is enlightening. That's why I invited Olivia Dennis to the show, where she bravely recounts her quest through the tangled healthcare system, grappling with the often invisible web of IBS, anxiety, OCD, and autism. Olivia's candid narrative strikes a chord, revealing the emotional toll of being misunderstood and the subsequent liberation of understanding her true self after an autism diagnosis at 19. Her resilience is a beacon for anyone feeling lost in the labyrinth of healthcare.
Our exploration of chronic illness doesn't stop there. Olivia courageously steps into the spotlight, shedding light on her life with a spectrum of genetic and chronic health conditions, including POTS, CMT, fibromyalgia, and gastroparesis. Her story is a testament to the relentless pursuit of balance between treatments and lifestyle changes, which includes a daily regimen of managing symptoms that could easily overwhelm the strongest among us. Our guest's insights into the genetic intricacies of CMT and the pervasive influence of fibromyalgia offer a poignant reminder of the complex battles fought behind the smiles of those with invisible illnesses.
Wrapping up with a touch of warmth and compassion, Olivia opened up about the joy she found in assembling spoonie boxes for fellow chronically ill young adults, a project that has seen 58 care packages spread light across the country. These acts of kindness, along with the steadfast support of therapy, family, and the unwavering love of pets, have become a cornerstone of her personal journey. Through stories of validation, laughter, and faith, this episode celebrates the indomitable spirit that unites us in the face of life's greatest health challenges. Join us for an episode filled with raw emotion, unwavering courage, and the healing power of community.
Instagram accounts: @oliviardennis
@yourpainhasapurpose
Info & Funding for Spoonie Boxes: https://www.gofundme.com/f/fund-care-boxes-for-chronically-ill-teens
Mental health resources: https://linktr.ee/mental.health.support
Olivia’s favorite ice packs: https://www.releafpack.com

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Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.

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Website:
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Bölümler

1. Unraveling the Threads of Invisible Illnesses with Olivia (00:00:00)

2. Olivia's Health Diagnosis Journey (00:00:09)

3. Living With Multiple Chronic Illnesses (00:17:52)

4. Managing Chronic Health Conditions (00:22:59)

5. Creating Spoonie Boxes for Chronic Illness (00:29:39)