En iyi Spoonie podcastleri (2024)

1
Breaking Down Barriers to Medication Access 26:19

11h ago26:19

26:19

Discover how you can manage the financial strain of chronic illnesses with insights from Laura and Jamie of Universal Drugstore, who join us for a candid discussion on medication affordability. We begin with Laura's heartfelt account of living with juvenile arthritis and how the exorbitant drug prices in the U.S. compare to more affordable internat…

1
Maggie's Creative Journey with Chronic Illness 20:49

7d ago20:49

20:49

Maggie Bushway's journey of overcoming brain cancer and navigating life with seizures is nothing short of inspiring. Diagnosed at just seven, she turned her battle into a beacon of hope through storytelling. As she shares her experiences, Maggie reveals how her father's blog posts and her sister's artwork helped her transform her story into a heart…

1
Navigating Hydrocephalus: Jeff and Katherine's Story of Hope and Resilience 58:29

14d ago58:29

58:29

What if you could recognize early signs of health deterioration before it turns into a crisis? Join us in a conversation with the inspiring couple, Jeff and Catherine Pearson, as they share their remarkable journey navigating life with hydrocephalus. Jeff, who has managed this condition since birth, and Catherine, his devoted caregiver, reveal thei…

1
Patient-Centered Medicine: Lauren's Journey with Conradi-Hunermann Syndrome 44:20

21d ago44:20

44:20

What if your greatest challenges could fuel your passion and shape your life's ambitions? Meet Lauren, a clinical assistant at Boston Children's Hospital, whose journey with Conradi-Hunermann syndrome and nearly 30 orthopedic surgeries has not only defined her path but also her dream of becoming a pediatric orthopedic surgeon. Through her eyes, we …

1
Chronic Slay 1:02:25

28d ago1:02:25

1:02:25

After grappling with juvenile idiopathic arthritis since she was just 15, our guest Ali shares her transformative journey from denial to empowerment. Allie's story is one of incredible resilience as she navigates the physical challenges of surgeries and isolation, ultimately finding strength and purpose through movement. As a certified personal tra…

1
Let's Catch Up Chelsey! 35:25

2M ago35:25

35:25

Ever wondered how someone navigates the unique challenges of a thriving career in musical theater while dealing with the daily hurdles of a chronic illness? Chelsey, our inspiring guest, shares her remarkable journey from Vancouver to the American Musical and Dramatic Academy and how she's now making a difference as the Associate Director of Musica…

1
Lupus to Open-Heart Surgery with Victoria 37:03

2M ago37:03

37:03

Ever wondered how someone can transform adversity into strength? Meet Victoria, a spirited yoga instructor living with lupus, who shares her powerful journey from undiagnosed college student to a wellness advocate in the bustling city of New York. Experience her raw and emotional recount of confronting extreme fatigue, hair loss, and brain fog befo…

1
Finding Balance: Jake's Journey with Lyme 41:15

2M ago41:15

41:15

What if embracing your vulnerabilities could become your greatest strength? Join us for an enlightening conversation with Jake Mayers, a Lyme coach who has turned his chronic illness journey into a pathway for helping others. From dealing with dyslexia as a child to confronting the harsh realities of a Lyme disease diagnosis at 15, Jake's story is …

1
From Marathons to Medical Miracles with Kait 37:02

2M ago37:02

37:02

Could you imagine enduring years of chronic pain, only to discover it was more than just "growing pains"? Meet Kait, our remarkable guest who shared her compelling journey from a passionate marathon runner to navigating a labyrinth of medical challenges. From femoral acetabular impingement to labral tears, Kait opens up about her painful experience…

1
Essential Tips for Your First Rheumatology Consultation 6:23

3M ago6:23

6:23

Walking into my first rheumatology appointment back in 2011 was overwhelming, but looking back, the right preparation made all the difference. This episode is your guide to navigating the often confusing world of autoinflammatory arthritis. We discuss the crucial elements of your first rheumatology visit, from bringing a detailed medical history to…

1
Understanding and Managing Lupus 36:32

3M ago36:32

36:32

What if a childhood filled with unexplained symptoms could finally find clarity years later? In this emotional and powerful episode, we journey with Jodi as she takes us through the highs and lows of her lupus diagnosis. From the age of four, Jodi's life was a whirlwind of mysterious rashes, fatigue, and pain. It wasn't until she was 13, with the h…

1
RA Rheum Champion Tells All 29:34

3M ago29:34

29:34

Imagine enduring years of unexplained fatigue, tendonitis, and carpal tunnel, only to find out these symptoms were just the tip of the iceberg. Join us as Stasha shares her enlightening journey to a rheumatoid arthritis diagnosis, revealing the red flags she overlooked and how a rheumatologist finally brought clarity to her persistent health issues…

1
Growth, Resilience, and Grit 29:54

3M ago29:54

29:54

How do you turn a life of chronic pain and addiction into one of resilience and inspiration? On this episode of "My Spoonie Sisters," we welcome Andrea Vincent, a beacon of hope in the chronic pain community. Andrea opens up about her journey from high school misdiagnoses to her battles with osteoarthritis, hypermobility syndrome, and fibromyalgia.…

1
Bridging the Gap: Patients in Medical Research with Emily 41:26

3M ago41:26

41:26

Are you curious about how patient participation can revolutionize medical research? Join us as we sit down with Emily, a dedicated bio-enthusiast and biotech professional, to uncover her journey from cell biology student to trailblazer at the biotech startup Immu. Emily shares her mission to make complex scientific concepts approachable, fueled by …

1
Spreading Positivity with Cards 2 Warriors 33:56

3M ago33:56

33:56

Have you ever wondered how a small act of kindness can make a colossal difference in someone's life? Join us for an uplifting conversation with Dawn, the inspiring founder of "Cards to Warriors," who transitioned from a radiation therapist to an advocate for patients and caregivers. Dawn shares her heartfelt journey and the touching story behind th…

1
From Diagnosis to Advocacy: Alexa's Journey 51:25

4M ago51:25

51:25

Have you ever wondered how one navigates life with multiple chronic illnesses? Meet Alexa Sutherland, who has been fighting against juvenile rheumatoid arthritis since she was just 15 months old and later fibromyalgia, ankylosing spondylitis, and the more recent Grave's disease diagnosis. Her journey is a testament to resilience and the power of co…

1
Catching Up with Alison 39:23

4M ago39:23

39:23

Can you imagine the frustration of battling a chronic illness and not finding the right treatment? On our milestone 100th episode, we reconnect with the remarkable Alison, who was diagnosed with rheumatoid arthritis at the age of 28. Her journey from struggling with an unhelpful specialist to meeting the incredible Dr. Tony is nothing short of insp…

1
Jen's Path to Understanding Pustular Psoriasis 9:50

4M ago9:50

9:50

Ever felt overwhelmed by a health condition misdiagnosis? In this heartfelt episode, join me, Gracefully Jen, as I recount my personal journey with psoriasis, starting from the first sores that appeared on my ankle back in 2016. Initially mistaken for a skin infection, my condition went through a series of misdiagnoses until a visit to my rheumatol…

1
Infertility and Parenthood with Dr. Danielle Keenan-Miller 33:43

4M ago33:43

33:43

What are the common physiological impacts of infertility? How do infertility and chronic illness overlap? How can therapists and doctors support their patients? In this podcast episode, I speak about infertility and parenthood with Dr. Danielle Keenan-Miller. We discuss how infertility can affect individual's and couples' psychological wellness, an…

1
How Parents and Therapists Can Help Children with Chronic Illness with Dr. Corinne Catarozoli 34:44

5M ago34:44

34:44

How does one set kids up for success regarding medical adherence when they are struggling with chronic illnesses? Why should parents be age-appropriately honest with their kids about their chronic illnesses? Where can parents find support to keep caring for their kids? In this podcast episode, I speak about how parents and therapists can help child…

1
Unraveling the Illness Experience with Joe Sanok 35:40

5M ago35:40

35:40

What is it like to identify as a spoonie? How do you adjust your identity in relation to living with chronic illness? What do you have to do every day that your healthy friends don’t have to? In this podcast episode, I unraveling the illness experience with Joe Sanok. He discusses how he came to identify as a Spoonie, and shares some of his perspec…

1
Rheum Champions Conversation 47:18

5M ago47:18

47:18

Curious about how to navigate life with rheumatoid arthritis while maintaining a positive outlook? Join us as we reconnect with Cheryl Crow with Jen Weaver, spirited advocates and fellow Spoonies, who share her heartfelt journies. Jen opens up about the severe allergic reactions she's faced with TNF inhibitors leading to pustular psoriasis, offerin…

1
Navigating Diagnosis with Career Coach Jenna Valovic 28:06

5M ago28:06

28:06

Have you ever felt like doctors are not invested in trying to solve your medical issues with you? Do you ever feel like you’re being passed along from specialist to specialist? Have you felt so sick and struggling to get a diagnosis that you also resigned yourself to living a life you don’t want - and how can you change that? In this podcast episod…

1
Navigating Life with Lupus: Elizabeth's Story 24:22

5M ago24:22

24:22

What if you were diagnosed with a chronic illness at the age of five? In this heartfelt episode, we sit down with Elizabeth, who opens up about her lifelong battle with lupus. From the early signs of hair loss and severe fatigue to the relentless support of her mother and medical team, Elizabeth’s story is one of resilience and hope. She takes us t…

1
23. WORKING WITH BOTANICALS + PHARMACEUTICALS with JENNIFER CANN | Weaving Modern + Ancient Medicines Together for Effective Healthcare 1:22:36

5M ago1:22:36

1:22:36

Do you find yourself confused about the safety and effectiveness of herbal medicine when so many providers warn you against them? Are you curious about the differences between herbs and pharmaceuticals? Join Kelsey Conger and Jennifer Cann on PLANET SPOONIE, the podcast for lymies and spoonies healing themselves and the world. On this week's episod…

1
One Parent's Take on Childhood Chronic Illness with Ken Herts 33:59

5M ago33:59

33:59

Have you ever felt like your parents just really don’t get what it’s like living with a chronic illness? Have you ever felt like they don’t know what to do to support you, or that you need some space? How can you form the relationship that you want with your family when living with chronic illness? In this podcast episode, I discuss one parent's ta…

1
Navigating Healthcare with Patrick's Expertise 43:38

5M ago43:38

43:38

Ever wondered how small lifestyle changes can significantly impact chronic illness management? Join us for an enlightening conversation with Patrick, a dedicated Florida-based pharmacist who specializes in reducing medication burdens for those with chronic illnesses and autoimmune diseases. Patrick shares his holistic approach to healthcare, which …

1
Robbie's Chronic Empowerment Movement 33:53

6M ago33:53

33:53

Could your mindset be the key to overcoming chronic illness? This episode uncovers the transformative journey of Robbie, an autoimmune empowerment coach who turned his battle with Crohn's disease into a mission to uplift others. From a star gymnast to a certified personal trainer, Robbie has now dedicated his life to autoimmune-specific coaching. L…

1
How to Wear a Bikini with Scars 20:58

6M ago20:58

20:58

Have you ever felt like it’s impossible to be who you want to be? Have you ever been concerned that you wouldn’t live up to your hopes and dreams? Did you know, it IS possible to live the life you want to live, even with a chronic illness? I’m Dr. Kate Herts, and in this podcast episode, I speak about how to wear a bikini with scars. I discuss my t…

1
A Transformative Journey through Multiple Myeloma with Sharon 38:56

6M ago38:56

38:56

What if the power to overcome a life-threatening illness lies within your mindset? Join us for an enlightening episode featuring mindset coach Sharon Banyas Hefetz, who bravely shares her journey of battling an aggressive form of multiple myeloma. Diagnosed at just 45, Sharon's story is not just one of medical treatments but of the incredible stren…

1
Internet Cures Circa Early 2000s 26:04

6M ago26:04

26:04

How can having internet access help a person who is isolated by chronic illness? What can you do to take care of your energy and mental health while using social media? How can you preserve your spoons while researching for information online? I’m Dr. Kate Herts, and in this podcast episode, I speak about internet cures circa the early 2000s. I ref…

1
Kristine's Journey: Resilience, Rare Diagnoses, and Empowering Community 44:05

6M ago44:05

44:05

Can you imagine going from running marathons to fighting for a diagnosis that doctors initially dismissed as stress? Kristine has lived this journey, and she shares it with us in a gripping conversation about her struggle with chronic illness and rare diagnoses. From the first strange tweak in her foot to the emotional toll of being invalidated by …

1
The Loneliest Little Lesbian in Brussels 25:35

6M ago25:35

25:35

What’s the tea on navigating love and sexuality while living with a chronic illness? Are you willing to wait out the tough parts? How can you find and strengthen your relationships with your loved ones while caring for yourself? In this podcast episode, I speak about being the loneliest little lesbian in Brussels. I discuss how I tried and struggle…

1
Too Sick for Crohn's Camp 37:48

6M ago37:48

37:48

What happens when something you’re so excited about takes a turn for the worst? How do you pick yourself back up from the disappointment? What can you do to look for and create some more spoons in your life? In this podcast episode, I speak about being too sick for Crohn’s camp. I discuss what it was like being in school with a chronic illness, and…

1
"It's Not Like You're Going to Die": My Illness Story, Diagnosis & Chronic Illness PTSD 37:19

6M ago37:19

37:19

Have you heard about chronic illness PTSD? Why can misdiagnoses cause chronic stress? What’s the tea on diagnosis in general? In this podcast episode, I speak about my illness story, diagnosis, and chronic illness PTSD. I introduce who I am, what I'm about, and my illness story. So tune in for the tea! Thanks for listening, I'd love to connect with…

1
Welcome to the Tea Spoonie Pod 17:58

6M ago17:58

17:58

Hello, and welcome to our first episode of the Tea Spoonie Podcast, where we’ll spill the tea on an array of topics. I hope you’ll leave the podcast with an additional spoon! (And if you don’t know what that means, give a listen!) Thanks for listening, I'd love to connect with you over on Facebook and Instagram. SHOW NOTES AND RESOURCES: Click here…

1
22. UNPACKING DETOX | The #1 Practice for Chronic Lyme Recovery 53:40

6M ago53:40

53:40

Do you wonder what the hype is about detox and all those fancy protocols and products you see in your social feed? Are you struggling to find an effective approach for chronic lyme and coinfections? Dealing with herx after herx and desperate for a better way? Join your friendly neighborhood herbalist, nutritionist, and lymie, Kelsey Conger, on PLAN…

1
Josie's Guide to Overcoming Autoimmune Challenges 45:51

6M ago45:51

45:51

Ever wondered if there's more to managing chronic illness than just medication? Discover the transformative journey of Josie, a fervent advocate for natural treatments for autoimmune diseases, as she shares her powerful story. From childhood ailments to grappling with rheumatoid arthritis and Hashimoto's, Josie's quest for healing led her to a holi…

1
Jessica's Recipe for Emotional and Physical Well-Being 54:45

7M ago54:45

54:45

When Jessica Mitchell, a health coach driven by a deeply personal narrative, steps into our podcast venue, the air fills with an undeniable energy of transformation and hope. Her sister's untimely passing ignited a fire in Jessica to champion the cause of lifestyle disease prevention, and she's here sharing her wisdom on how to forge a path towards…

1
21. THE TRUTH ABOUT RAW DAIRY | Understanding the Pros + Cons of Local Raw Milk 26:19

7M ago26:19

26:19

Have you ever wondered about the raw dairy hype and what the controversy is all about? Are you wondering what the difference between raw and pasteurized dairy is, or if it really matters? Join your host Kelsey Conger, a Clinical Herbalist + Holistic Nutritionist on PLANET SPOONIE, the podcast for lymies and spoonies healing themselves and the world…

1
Being Each Other’s Lifeline 6:14

7M ago6:14

6:14

Do you ever feel like you're drowning in the midst of life's challenges? In this heartfelt mini-episode, I, Gracefully Jen, reflect on the importance of recognizing when our Spoonie Sisters are struggling and how vital it is to be that supportive lifeline for one another. We all wear masks to navigate our daily lives, but it's crucial to see beyond…

1
20. THE PLANTS ARE OUR ELDERS with CAMILLE EDWARDS | Fostering Relationships + Imagining a Better World with Our Plant Kin 51:21

7M ago51:21

51:21

Do you feel caught up in the endless cycle of hustle culture, but crave a deeper connection to nature and the earth? Are you curious about herbal medicine, but feel clueless about where to start? Do you want to learn more about powerful plant medicines like cacao? Join Kelsey Conger and Camille Edwards on PLANET SPOONIE, the podcast for lymies and …

1
52. FAQ about TSP 35:39

7M ago35:39

35:39

Today I'm answering frequently asked questions about my live group mentorship program, the Thriving Spoonie Pathway. Save 45% on enrollment until MAY 29! Join here: https://www.thespooniementor.com/tsp --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

1
Jen's Guide to Thriving with Arthritis: Five Strategies for a Fulfilling Life 6:09

7M ago6:09

6:09

Are you ready to transform how you navigate the daily hurdles of arthritis? Join me, Gracefully Jen, for practical advice that promises to enhance your daily living with arthritis. Overcoming the challenges of chronic illness is no small feat, but with our latest episode, you'll learn five key strategies to rework your routine for the better. We fo…

1
19. AN HERBALISTS APPROACH TO FERTILITY with VERONICA RICKSEN, RH | Cycle Tracking for Greater Autonomy, Body Literacy, + Empowerment 53:06

7M ago53:06

53:06

Have you ever considered freezing your eggs? Are you curious about cycle tracking, but feel clueless about how to start? Do you want to optimize your hormone health, regardless of where you're at in life? Join herbalists Kelsey Conger, MS and Veronica Ricksen, RH on PLANET SPOONIE, the podcast for lymies and spoonies healing themselves and the worl…

1
Annie's Blueprint Your Health & Wellness Coach 46:26

7M ago46:26

46:26

Navigating life with an autoimmune condition can feel like a solo journey, but it doesn't have to be. I had the pleasure of bringing in Annie, my health and wellness coach, who's an expert in turning living with autoimmune diseases into thriving despite them. Together, we unpack the art of crafting wellness plans that are as unique as your fingerpr…

1
18. THE EARTH IS YOUR ALLY with ALAYNA BELLQUIST | Navigating Lyme Recovery with Nature as Your Guide 1:11:39

7M ago1:11:39

1:11:39

Since being diagnosed with lyme or watching a loved one struggle with this difficult disease, have you developed a fear of going outside? Do ticks scare you into staying indoors when you'd rather be soaking up some sunshine? Join herbalist Kelsey Conger and marine scientist Alayna Bellquist on PLANET SPOONIE, the podcast for lymies and spoonies hea…

1
51. "I don't remember the last time I had a headache!" Inspiring success stories from TSP graduates. 52:57

7M ago52:57

52:57

I recorded a conversation with three amazing members of my group mentorship program: the Thriving Spoonie Pathway. They share where they were before they joined, how their life has changed since then, and what helped them make the decision to join. TSP is a live group experience that will help you find freedom from debilitating fatigue and unpredic…

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