TAPS (Twin Anemia Polycythemia Sequence). What is it and why it really matters when pregnant with twins with Stephanie Ernst

Twiniversity Podcast with Natalie Diaz

Player FM - Internet Radio Done Right

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Parenting

yedi yıl önce eklendi

İçerik Natalie Diaz tarafından sağlanmıştır. Bölümler, grafikler ve podcast açıklamaları dahil tüm podcast içeriği doğrudan Natalie Diaz veya podcast platform ortağı tarafından yüklenir ve sağlanır. Birinin telif hakkıyla korunan çalışmanızı izniniz olmadan kullandığını düşünüyorsanız burada https://tr.player.fm/legal özetlenen süreci takip edebilirsiniz.

All About Change

1
Jay Ruderman - How to Find Your Fight & Drive Social Change 32:17

4 gün önce32:17

Daha Sonra Çal

Listeler

Beğen

Beğenildi

32:17

Jay is more than just the host of All About Change podcast. He is a lawyer and international activist, who has focused his life’s work on seeking social justice by advocating for the rights of people with disabilities worldwide. On the special episode of All About Change, Mijon Zulu, the managing producer of the "All About Change" podcast, is taking over hosting duties to interview Jay Ruderman about his new book, his activist journey, and why activism is even more important today. Episode Chapters (0:00) intro (02:38) How does one choose a cause to go after? (03:33) Jay’s path to activism (07:50) Practical steps a new activist can take (09:24) Confrontation vs trolling (17:36) Learning from activists operating in different sectors (19:20) Resilience in activism (22:24) Reflections on Find Your Fight and goodbye For video episodes, watch on www.youtube.com/@therudermanfamilyfoundation Stay in touch: X: @JayRuderman | @RudermanFdn LinkedIn: Jay Ruderman | Ruderman Family Foundation Instagram: All About Change Podcast | Ruderman Family Foundation To learn more about the podcast, visit https://allaboutchangepodcast.com/ Looking for more insights into the world of activism? Be sure to check out Jay’s brand new book, Find Your Fight , in which Jay teaches the next generation of activists and advocates how to step up and bring about lasting change. You can find Find Your Fight wherever you buy your books, and you can learn more about it at www.jayruderman.com .…

1 yıl önce 53:15

MP3•Bölüm sayfası

In this episode, we unravel the mysteries surrounding Twin Anemia Polycythemia Sequence (TAPS) alongside Stephanie Ernst, a dedicated twin mom whose journey propelled her to advocate for awareness and support for families affected by this rare condition.

Stephanie's personal narrative, fueled by her experience with identical twin daughters born with TAPS, serves as the driving force behind her mission to shed light on this often overlooked aspect of twin pregnancies. Stephanie underscores the vital role of researchers and advocates in amplifying awareness and understanding of TAPS. From founding the TAPS Support Facebook group to establishing a dedicated foundation for research funding, Stephanie's efforts have cultivated a supportive community where families can find solace, resources, and empowerment.

For more information:

https://www.tapssupport.com/

https://stephanieernst.nl/advocacy/

Subscribe to the Twiniversity Email Newsletter!

Expecting twins? Twiniversity has you COVERED with online classes on:

Breastfeeding Twins
Twins After Singletons
Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing)

Click here to sign up for a class!

214 bölüm

#Society #Pregnant With Twins #Pregnant #Twiniversity #Fitness #Natalie Diaz #Parenting #Lifestyle #Kids And Families #Twin #Twins FOR Parents #Parents Of Twins

TAPS (Twin Anemia Polycythemia Sequence). What is it and why it really matters when pregnant with twins with Stephanie Ernst

Twiniversity Podcast with Natalie Diaz

31 subscribers

published 1 yıl önce

Paylaş

MP3•Bölüm sayfası

For more information:

https://www.tapssupport.com/

https://stephanieernst.nl/advocacy/

Subscribe to the Twiniversity Email Newsletter!

Expecting twins? Twiniversity has you COVERED with online classes on:

Breastfeeding Twins
Twins After Singletons
Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing)

Click here to sign up for a class!

214 bölüm

#Society #Pregnant With Twins #Pregnant #Twiniversity #Fitness #Natalie Diaz #Parenting #Lifestyle #Kids And Families #Twin #Twins FOR Parents #Parents Of Twins

Tüm bölümler

1
Being A Twin Mom In Medicine Isn't Always Easy with Rebecca Quinonez 59:05

20 weeks önce59:05

59:05

In this episode, we chat with Rebecca, an expectant twin mom and surgical resident, about her enlightening journey through pregnancy. Rebecca opens up about how she has come to realize that control is an illusion, especially in the context of balancing her demanding career and personal life. She shares her experiences of the profound importance of community and support during this time, emphasizing how prioritizing her mental and physical health has become crucial. Rebecca candidly discusses her shift away from seeking external validation and approval, learning instead to focus on what truly matters for her and her growing family. Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
"I'm Touched Out!" Dealing with the epic struggles twin moms face with Kristen Emberly 28:51

22 weeks önce28:51

28:51

In this episode, we sit down with twin mom Kristen, a mental health advocate specializing in children and twin moms, as she shares her journey of burnout and discovery of self-care strategies. Kristen delves into the importance of understanding the sensory system and prioritizing self-care to avoid burnout and be better parents. We discuss practical ways for twin moms to slow down, resist the hustle culture, and proactively take time for themselves before reaching the breaking point. Kristen highlights the significance of not seeing self-care as selfish but as essential for mental well-being and parenting resilience, emphasizing the importance of resetting the nervous system and prioritizing self-care. Join us for an insightful conversation on nurturing mental health and well-being as a twin parent. Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
Bringing twins into the world by storm... literally! with Zachary Zirlin 1:14:11

24 weeks önce1:14:11

1:14:11

Join us as we sit down with Twin Dad Zachary to hear about his whirlwind experience just as his twin babies were about to arrive. From enduring a hurricane that flooded their new apartment, to navigating through temporary living arrangements in Airbnbs, hotels, and friends' houses during the newborn phase, Zachary shares his family’s remarkable journey. Tune in as we discuss how they faced challenges with nanny incidents and weathered financial uncertainty during the writers' strike, all while maintaining calm and making the best of every situation. Discover the resilience of this family, rooted in their shared values and unwavering love for each other. Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
"We Paid Extra For This?" A single embryo transfer turns into twins with Charlotte Gorman 1:16:30

26 weeks önce1:16:30

1:16:30

In this episode, we speak with twin mom Charlotte, who became a twin mom through IVF. Charlotte shares her surprise when a single embryo transfer resulted in a multiples pregnancy, recounting her tough journey through health scares, loss, an early birth, a traumatic C-section, and NICU time. She opens up about the challenges of figuring it all out once her babies were home and emphasizes the importance of support during difficult seasons. Despite the unplanned twists and turns, Charlotte is grateful that her twin girls are happy and healthy. She also discusses her ongoing efforts to heal from the pain and trauma of her birthing experience, highlighting the resilience and joy her family shares. We, as humans, have it within us to survive through the ups and downs. Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
Living in An Airstream with Twins with Kelsey Bang 1:06:16

27 weeks önce1:06:16

1:06:16

In this episode, we chat with twin mom Kelsey, who, along with her husband and twins, transitioned from a shopaholic lifestyle to becoming nomads living in a 240 sq ft Airstream. Kelsey shares how they sold everything, got out of debt, and are now thriving while traveling across the U.S. They learned that less is more for their family. We discuss the unique challenges of raising twins on the road, maintaining stability and routines for her children, and making consistent efforts to visit family and attend church. Join us to hear about their inspiring journey and how they navigate life on wheels. Follow Kelsey’s journey on the road with her family: Instagram - https://www.instagram.com/hangwiththebangs/?hl=en YouTube - https://www.youtube.com/hangwiththebangs Blog - https://kelseybang.com/ Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
How do you balance life when you're a twin mom....you don't. With Michele Magliocco 1:16:22

30 weeks önce1:16:22

1:16:22

In this episode, we speak with Michele, an identical-twin mom, about her realization that achieving a balanced life while raising twins is a myth. Michele shares her journey from discovering she was having twins and experiencing NICU time to struggling with work-life balance in the restaurant industry and doubting her effectiveness as a mom. She reflects on her shift in priorities, from chasing career success to focusing on her family, leading her to reevaluate her purpose and ponder "what's next?" This candid conversation offers valuable insights into the evolving nature of personal and professional goals after becoming a parent. Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
And Twins Make Five with Katie McAlpine 52:48

32 weeks önce52:48

52:48

In this episode, we speak with twin mom Katie, a military spouse with three singletons and a set of twins, about how she navigates raising five children while her husband serves in the military. Katie shares valuable advice from other military families on managing during her husband's deployments and frequent relocations. She discusses the vital support network among military wives and the unique differences she faced during her twin pregnancy and NICU time compared to her singleton pregnancies. Tune in for insights on resilience, community, and balancing motherhood in a military family. Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
A Bumpy Wild First Year with Twins with Madison Greenspan 50:25

34 weeks önce50:25

50:25

In this episode, we chat with twin mom Madison about her challenging first year with twins, beginning with her water breaking at 27 weeks. Madison shares the ups and downs of managing NICU time, her exclusive pumping breastmilk journey for her premature babies, and the eventual switch to formula. She opens up about navigating a traumatic event and how her family coped with the bumpy ride, offering valuable insights and support for other parents facing similar experiences. Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
Living Life in the Fab Lane with Twin Dad Thomas Cole 57:25

36 weeks önce57:25

57:25

In this episode, we chat with Twin Dad Thomas about his journey raising two-year-old twins. Thomas shares the excitement and challenges of moving back to the city after four years in Long Island and offers unique insights into urban parenting. He and his partner navigate the joys and hurdles of being gay dads, from the intricacies of traveling with young twins to the trials of finding a supportive community of parent friends. Plus, Thomas makes a special announcement: their family is growing! Tune in to hear about their journey living life in the Fab Lane as Twins Dads. Find more of Thomas here: Instagram @iamthomascole_show YouTube - https://youtube.com/@iamthomascole_show?si=ELIjenQ7S4xenlRD Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
How The NICU Can Change You. An inspiring story with Meghan McEvoy 45:30

38 weeks önce45:30

45:30

In this episode, we chat with twin mom Meghan about her experience in the NICU, which motivated her to start the nonprofit organization "NICU Care Club." Meghan shares how her journey highlighted the need for better support and resources for NICU families, and how her organization aims to fill those gaps. Together, Natalie and Meghan discuss various ways families in the NICU can be supported, offering practical advice and resources to help navigate this difficult time. For more information on the NICU Care Club: Donation website - https://www.gofundme.com/f/nicu-care-club Instagram - https://www.instagram.com/nicucareclub?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw== Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
Cholestasis of Pregnancy and why you need to know about it as a twin mom with Donna Benavides 49:21

40 weeks önce49:21

49:21

In this informative episode, we sit down with Donna, a brave mom who shares her journey through pregnancy loss and her diagnosis of Cholestasis of Pregnancy. Donna opens up about the emotional challenges she faced and provides valuable insights into this liver condition, discussing its symptoms, risks, and the importance of early diagnosis. She offers practical advice on approaching healthcare teams, asking the right questions, and ensuring proper support and care. Through her story, Donna emphasizes the significance of self-advocacy. For more information and resources: Website: https://icpcare.org Facebook - https://www.facebook.com/icpcare Instagram - https://www.instagram.com/icpcare Twitter - https://twitter.com/icpcare YouTube - https://www.youtube.com/user/icpcare Support group page https://icpcare.org/icp-community/support-groups/ Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
Twins Twice with Twin Dad Josh Longmore 57:11

41 weeks önce57:11

57:11

Happy Father's Day! In this special episode, we chat with Josh, a proud dad of two sets of twins, about his unique experiences and the need for support and resources for twin dads from pregnancy and beyond. Josh shares insights from his podcast "Double Trouble," which he co-hosts with his best friend, offering an unfiltered look into their fatherhood journey. Let's hear the dad's side of things and learn how we can help support our twin dads out there, providing encouragement and hope to those navigating the challenges and joys of raising twins. Listen to Josh’s Podcast here: Double Trouble on Apple - https://podcasts.apple.com/us/podcast/double-trouble-the-twin-dad-podcast/id1676119584 Instagram - https://www.instagram.com/doubletroubletwindads/ Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
Does it matter how much you prepare for twins? With Elizabeth Banks 1:10:47

42 weeks önce1:10:47

1:10:47

In this episode, we sit down with Elizabeth, a twin mom who opens up about the surprises and challenges of parenthood that no amount of preparation can fully cover. She reflects on how her maternal instincts kicked in and emphasizes the reality that pregnancy, parenting, and caring for a newborn come with countless unforeseen experiences. Elizabeth also discusses being a mom on the autism spectrum, the importance of mental health, and how the well-being of the mother is just as crucial as the health of the babies. Her candid account offers invaluable insights and reassurances for anyone on the path to motherhood. Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
A Twin With Two Sets of Twins (+1) Shares Her Truth with Sadie Conrad 49:09

44 weeks önce49:09

49:09

In this heartfelt episode, we sit down with Sadie Conrad, a remarkable mother of two sets of twins and a twin herself. Sadie candidly shares her journey, from the loss of her twin sister during her teenage years to the unexpected joy and challenges of raising two sets of twins. Through her experiences, Sadie illuminates the intricate ways her family honors her sister's memory in their everyday lives and how her twinship has shaped her perspective on motherhood and resilience. Join us as Sadie opens up about navigating the complexities of grief, love, and the unique bond of twinhood in this touching and inspiring conversation. Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

1
One Tongue Tied Twin with Courtney Flint 1:08:00

46 weeks önce1:08:00

1:08:00

In this episode, we sit down with Courtney, a twin mom and social worker, to delve into her emotional journey of dealing with tongue tie in one of her twin babies. Join us as Courtney candidly shares her experiences and the challenges she faced in making the decision to have the tongue tie cut, and how this process resulted in a growth of confidence in her husband. Throughout the conversation, Courtney offers invaluable advice to parents grappling with similar issues, emphasizing the importance of doing what's best for your family above all else. Tune in for a heartfelt discussion filled with insights and encouragement for parents navigating tongue tie and other feeding difficulties. Subscribe to the Twiniversity Email Newsletter! Expecting twins? Twiniversity has you COVERED with online classes on: Breastfeeding Twins Twins After Singletons Baby Safety (CPR, First Aid, Car Seat Safety, Childproofing) Click here to sign up for a class ! Follow us on: YouTube Twitter Instagram Pinterest Facebook…

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Player FM şu anda sizin için internetteki yüksek kalitedeki podcast'leri arıyor. En iyi podcast uygulaması ve Android, iPhone ve internet üzerinde çalışıyor. Aboneliklerinizi cihazlar arasında eş zamanlamak için üye olun.