Meet Julia G-P!

Bowel Moments

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***Warning that this episode includes an open discussion about sexuality and may not be suitable for all audiences.***
This week we talked to the lovely Julia Gaspare-Pruchnicki! Julia is a medical student that was initially diagnosed with UC when she was 9 years old. She went on to have a colectomy and J-Pouch when she was 10 years old. After struggling with pouchitis and fistulas, Julia's diagnosis was changed to Crohn's disease. We talk to her about the treatments she's tried for her fistulizing disease including clinical trials with stem cells. We discussed the accommodations that she took advantage of when she was doing her undergraduate degree as well as medical school and how that has helped her having piece of mind. We talk to her about her passion for becoming a family medicine doctor and how she feels like she can use what she's learned from her Crohn's to help other people navigate their health. We discuss her mom's UC and J-Pouch and how that helped her feel like she had a partner and advocate as she navigated her disease. And finally we had a really frank conversation about how IBD and especially fistulas can affect your sex life and sexuality. We really appreciate Julia's willingness to be so open with this part of her life and her disease.
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)
Links:

• Sex and Relationships- Crohn's & Colitis UK
• Sexuality and IBD- video from Canadian Society of Intestinal Research
• Perianal Fistula and Crohn's - video from Mayo Clinic

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Bölümler

1. Meet Julia G-P! (00:00:00)

2. [Ad] Tune in to the Patient Advocacy Voices Podcast today (00:15:15)

3. (Cont.) Meet Julia G-P! (00:16:05)