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Update from Dillion Loomis-Head: There’s always one more step
Manage episode 376874761 series 3294266
İçerik Raising Rare tarafından sağlanmıştır. Bölümler, grafikler ve podcast açıklamaları dahil tüm podcast içeriği doğrudan Raising Rare veya podcast platform ortağı tarafından yüklenir ve sağlanır. Birinin telif hakkıyla korunan çalışmanızı izniniz olmadan kullandığını düşünüyorsanız burada https://tr.player.fm/legal özetlenen süreci takip edebilirsiniz.
Since last talking with Dillon earlier this year, he has faced some difficulties related to his mental health, access to medication, and not being granted access to a new clinical trial. It is always a pleasure to talk with Dillon and this episode follows suit.
Dillon is a strong advocate for mental health awareness, especially within the rare disease community. In this episode, Dillon gets raw about the reality of disappointments and not having access to available treatments. He talks with Kevin about the reality of how some relationships are impacted by his rare disease, and also the profound importance of just being around people in his community.
On October 8th, Dillon is participating in RideAtaxia to help raise money and awareness for Friedreich’s Ataxia. If you would like to learn more about RideAtaxia, to help Dillon reach his goal, or even to join Dillon’s team click here.
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