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Exploring Families' Needs
Manage episode 312495032 series 3236617
İçerik David Cunnington and SCN2A Australia tarafından sağlanmıştır. Bölümler, grafikler ve podcast açıklamaları dahil tüm podcast içeriği doğrudan David Cunnington and SCN2A Australia veya podcast platform ortağı tarafından yüklenir ve sağlanır. Birinin telif hakkıyla korunan çalışmanızı izniniz olmadan kullandığını düşünüyorsanız burada https://tr.player.fm/legal özetlenen süreci takip edebilirsiniz.
Families can find it challenging dealing with the healthcare system when children with genetic epilepsy and developmental epileptic encephalopathies are unwell. To help identify needs and plan towards improving services, Genetic Epilepsy Team Australia convened a roundtable including families, clinicians and researchers. In this episode Kris Pierce discusses the outcomes of the roundtable and plans for the future.
Hosted by Kris Pierce and David Cunnington, parents of Will, who has SCN2A.
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Links
- Genetic Epilepsy Team Australia
- Genetic Epilepsy Clinics - podcast episode
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