Exploring Families' Needs
Manage episode 312495032 series 3236617
Families can find it challenging dealing with the healthcare system when children with genetic epilepsy and developmental epileptic encephalopathies are unwell. To help identify needs and plan towards improving services, Genetic Epilepsy Team Australia convened a roundtable including families, clinicians and researchers. In this episode Kris Pierce discusses the outcomes of the roundtable and plans for the future.
Hosted by Kris Pierce and David Cunnington, parents of Will, who has SCN2A.
Leave a review and subscribe via Apple Podcasts.
You can also find SCN2A Insights on Spotify, and Google Podcasts or in your podcast app.
Links
- Genetic Epilepsy Team Australia
- Genetic Epilepsy Clinics - podcast episode
See omnystudio.com/listener for privacy information.
28 bölüm