Episode 379: The Pros and Cons of Participating in MS Research with Dr. Kathy Zackowski and Mimi Brown

RealTalk MS

More effective treatments and even cures for MS can only happen as a result of clinical research. And clinical research can only happen when people living with MS choose to become research participants. But what are the pros and cons that you should consider when you're thinking about participating in MS research?

The National MS Society's Associate Vice President of Research, Dr. Kathy Zackowski, returns to the podcast to discuss the risks and benefits of participating in clinical research. We're also joined by Mimi Brown, who lives with primary progressive MS. Mimi will share her experiences as a participant in several MS research studies.

We'll also remember Professor Giancarlo Comi, a true giant in the MS research community who passed away last week.

We'll discuss the updated Brain Health -- Time Matters report.

We'll tell you about a research collaboration between the National MS Society, Breakthrough T1D (formerly the Juvenile Diabetes Research Foundation), and the Lupus Research Alliance.

And we're sharing the details about the International Progressive MS Alliance's upcoming global webcast.

We have a lot to talk about! Are you ready for RealTalk MS??!

Remembering Professor Giancarlo Comi :22

This Week: Participating in MS research 3:28

Experts release the Brain Health -- Time Matters report 4:10

The National MS Society teams up with Breakthrough T1D and the Lupus Research Alliance to fund research in common mechanisms that drive autoimmunity 6:35

The International Progressive MS Alliance is hosting a global webcast on Dec. 11 9:27

Dr. Kathy Zackowski and Mimi Brown discuss the risks and benefits of participating in MS research 10:58

Share this episode 29:52

Have you downloaded the free RealTalk MS app? 30:11

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LINKS

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REPORT: Brain Health -- Time Matters https://www.msbrainhealth.org/wp-content/uploads/2024/09/Brain-Health-Time-Matters-2024.pdf

VIDEO: Brain Health -- Time Matters https://www.msbrainhealth.org/launch-videos

Decoding Immunity: Common Mechanisms of Autoimmunity https://decodingautoimmunity.org

REGISTER FOR THE WEBCAST: What We're Learning from Clinical Trials https://www.msif.org/webcast-clinical-trials

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RealTalk MS Episode 379 Guests: Dr. Kathy Zackowski and Mimi Brown

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