136: An Interview With Susan Ward, PhD, Founder and Executive Director of the Collaborative Trajectory Analysis Project (cTAP)

Rare Care Podcast

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Mind The Business: Small Business Success Stories

1
Understanding Taxes as a Newly Formed Small Business - Part 2 of the Small Business Starter Kit 28:24

25 gün önce28:24

Daha Sonra Çal

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Beğenildi

28:24

In our second installment of the Small Business Starter Kit series - we’re tackling a topic that’s sometimes tricky, sometimes confusing, but ever-present: taxes. Hosts Austin and Jannese have an insightful conversation with entrepreneur Isabella Rosal who started 7th Sky Ventures , an exporter and distributor of craft spirits, beer, and wine. Having lived and worked in two different countries and started a company in a heavily-regulated field, Isabella is no stranger to navigating the paperwork-laden and jargon-infused maze of properly understanding taxes for a newly formed small business. Join us as she shares her story and provides valuable insight into how to tackle your business’ taxes - so they don’t tackle you. Learn more about how QuickBooks can help you grow your business: QuickBooks.com See omnystudio.com/listener for privacy information.…

1 yıl önce 15:32

MP3•Bölüm sayfası

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Susan Ward, PhD, founder and executive director of the Collaborative Trajectory Analysis Project (cTAP), which seeks to broaden patient eligibility for clinical trials in Duchenne muscular dystrophy.

171 bölüm

#Science #Fitness #Medicine #Rare Care

Rare Care Podcast

136: An Interview With Susan Ward, PhD, Founder and Executive Director of the Collaborative Trajectory Analysis Project (cTAP)

Rare Care Podcast

published 1 yıl önce

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MP3•Bölüm sayfası

171 bölüm

#Science #Fitness #Medicine #Rare Care

Tüm bölümler

Rare Care Podcast

1
162: An Interview With John Anderson, MD, Expert on Hereditary Angioedema 10:32

13 gün önce10:32

10:32

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews John Anderson, MD, chief research officer at AllerVie Clinical Research, on the complexities of diagnosing and treating hereditary angioedema.

Rare Care Podcast

1
161: An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art Still 17:03

18 gün önce17:03

17:03

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Art Still, former defensive end for the Kansas City Chiefs and an NFL Hall of Famer who's now a patient advocate dedicated to raising awareness about amyloidosis.

Rare Care Podcast

1
160: An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis 17:03

25 gün önce17:03

17:03

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews oncologist-hematologist Heather Landau, MD, of Sloan Kettering Memorial Cancer Center in New York City, for National Amyloidosis Awareness Month.

Rare Care Podcast

1
158: An Interview With Hereditary Angioedema Expert Dr. Timothy Craig 14:19

4 weeks önce14:19

14:19

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Timothy Craig, DO, a tenured professor of medicine, pediatrics and biomedical sciences at Pennsylvania State University in Hershey. Dr. Craig has been researching hereditary angioedema for 30 years.

Rare Care Podcast

1
158: An Interview With Dr. Sangeetha Venugopal on the relationship between smoking and myelodysplastic syndromes (MDS) 12:08

6 weeks önce12:08

12:08

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sangeetha Venugopal, MD, assistant professor of clinical medicine at the University of Miami's Sylvester Comprehensive Cancer Center. Dr. Venugopal speaks on how smoking worsens outcomes for patients with a group of blood cancers known as myelodysplastic syndromes (MDS).…

Rare Care Podcast

1
157: An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN 12:15

7 weeks önce12:15

12:15

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrea Renzi, a New Hampshire mother and patient advocate whose family has been affected by hemolytic disease of the fetus and newborn (HDFN).

Rare Care Podcast

1
156: An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT) 13:27

8 weeks önce13:27

13:27

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews James Bussel, MD, emeritus professor of pediatrics, medicine, and obstetrics and gynecology at New York's Weill Cornell Medicine. The topic of their discussion is nipocalimab as a potential treatment for fetal and neonatal alloimmune thrombocytopenia (FNAIT).…

Rare Care Podcast

1
155: An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California 15:24

8 weeks önce15:24

15:24

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rigoberto Garcia, executive director of the Hemophilia Foundation of Southern California, about the difficulty minorities—especially undocumented Hispanics—have in accessing treatment for their bleeding disorders.

Rare Care Podcast

1
154: An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute 13:16

9 weeks önce13:16

13:16

Larry Luxner, senior correspondent for Rare DIsease Advisor, interviews Kristin Hatcher, director of pediatric and rare diseases at the Global Liver Institute. Hatcher has both alpha-1 antitrypsin deficiency (AATD) and Von Willebrand disease, a rare clotting disorder.

Rare Care Podcast

1
153: An Interview With Terry Jo Bichell, PhD, Founder and Director of CombinedBrain 15:31

10 weeks önce15:31

15:31

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Terry Jo Bichell, PhD, founder and director of CombinedBrain, which advocates for patients with 110 neurogenetic diseases. Dr. Bichell is part of a panel that's studying how the US Food and Drug Administration can do a better job of speeding up clinical trials and becoming more transparent about its decisions.…

Rare Care Podcast

1
152: An Interview With Erin Collins, Founder of the Chasing Rainbows Foundation 15:23

12 weeks önce15:23

15:23

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Erin Collins, founder of the Chasing Rainbows Foundation in North Carolina's Outer Banks. The charity raises awareness of HDFN and other rare pregnancy-related diseases.

Rare Care Podcast

1
151: An Interview With NMOSD Expert Dean Wingerchuk, MD, of the Mayo Clinic 10:27

13 weeks önce10:27

10:27

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dean Wingerchuk, MD, speaks on the potential for treating neuromyelitis optica spectrum disorder (NMOSD) with stem-cell therapy.

Rare Care Podcast

1
150: An Interview With Beloved Huntington Disease Activist Jimmy Pollard 12:17

13 weeks önce12:17

12:17

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jimmy Pollard, who for the past 38 years has advocated on behalf of people around the world affected by Huntington disease.

Rare Care Podcast

1
149: An Interview With Clinical Psychologist Rosalind Kalb, PhD, of Can Do-MS 13:55

15 weeks önce13:55

13:55

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews clinical psychologist Rosalind Kalb, lead senior programs consultant for Can-Do MS, a Colorado-based nonprofit health and wellness organization.

Rare Care Podcast

1
148: An Interview With Huntington Disease Patient Activist Tanita Allen 11:16

15 weeks önce11:16

11:16

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Tanita Allen, a Black woman with Huntington disease who has made it her mission to increase awareness about the disorder and its devastating impact on patients regardless of their racial or ethnic background.

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136: An Interview With Susan Ward, PhD, Founder and Executive Director of the Collaborative Trajectory Analysis Project (cTAP)