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İçerik Go Shout Love tarafından sağlanmıştır. Bölümler, grafikler ve podcast açıklamaları dahil tüm podcast içeriği doğrudan Go Shout Love veya podcast platform ortağı tarafından yüklenir ve sağlanır. Birinin telif hakkıyla korunan çalışmanızı izniniz olmadan kullandığını düşünüyorsanız burada https://tr.player.fm/legal özetlenen süreci takip edebilirsiniz.
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87 - Meet Haylee - Part 1

32:08
 
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Manage episode 296886550 series 2412757
İçerik Go Shout Love tarafından sağlanmıştır. Bölümler, grafikler ve podcast açıklamaları dahil tüm podcast içeriği doğrudan Go Shout Love veya podcast platform ortağı tarafından yüklenir ve sağlanır. Birinin telif hakkıyla korunan çalışmanızı izniniz olmadan kullandığını düşünüyorsanız burada https://tr.player.fm/legal özetlenen süreci takip edebilirsiniz.
It is a new month and that means a new feature family.
Today we are talking with Kati and Derek, the parents to Haylee, a sassy, smart and determined 3 year old girl from Overland Park, KS
Haylee has been diagnosed with RYR-1 or also known as Central Core disease.
Derek and Kati tell you more about Haylee’s medical journey, her diagnosis and what this means for her daily life. There is a lot there to unpack and some details that are unique to Haylee. This is part 1 of two episodes of the conversation with Derek and Kati, it begins with talking about Haylee, her personality, her relationship with her brother and then into her diagnosis. But a large part of this episode centers around being and advocate for Haylee and then ultimately for other kids like Haylee. These parents are great examples of advocacy in the hospital, their son is a great example of being an advocate as a child and a sibling, and then they take it a step further by joining a parent board to speak up for additional kiddos on medical journeys.
Connect with Derek and Kati
http://www.facebook.com/kkennedy915
https://www.instagram.com/kennedy_mama3/
Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/
  continue reading

130 bölüm

Artwork
iconPaylaş
 
Manage episode 296886550 series 2412757
İçerik Go Shout Love tarafından sağlanmıştır. Bölümler, grafikler ve podcast açıklamaları dahil tüm podcast içeriği doğrudan Go Shout Love veya podcast platform ortağı tarafından yüklenir ve sağlanır. Birinin telif hakkıyla korunan çalışmanızı izniniz olmadan kullandığını düşünüyorsanız burada https://tr.player.fm/legal özetlenen süreci takip edebilirsiniz.
It is a new month and that means a new feature family.
Today we are talking with Kati and Derek, the parents to Haylee, a sassy, smart and determined 3 year old girl from Overland Park, KS
Haylee has been diagnosed with RYR-1 or also known as Central Core disease.
Derek and Kati tell you more about Haylee’s medical journey, her diagnosis and what this means for her daily life. There is a lot there to unpack and some details that are unique to Haylee. This is part 1 of two episodes of the conversation with Derek and Kati, it begins with talking about Haylee, her personality, her relationship with her brother and then into her diagnosis. But a large part of this episode centers around being and advocate for Haylee and then ultimately for other kids like Haylee. These parents are great examples of advocacy in the hospital, their son is a great example of being an advocate as a child and a sibling, and then they take it a step further by joining a parent board to speak up for additional kiddos on medical journeys.
Connect with Derek and Kati
http://www.facebook.com/kkennedy915
https://www.instagram.com/kennedy_mama3/
Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/
  continue reading

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