Addressing an Emerging Need: The Autism and Grief Project

Bereaved But Still Me

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Guests:

• Dr. Ken Doka, Senior Vice President of Grief Programs at the Hospice Foundation of America
• Amy Tucci, President and CEO of the Hospice Foundation of America
• Alex LaMorie Advisory Board Member of the Autism and Grief Project

Overview of the Autism and Grief Project:

• Website launched in September 2022 to provide grief resources for autistic adults, their families, and professionals
• Features testimonials, social stories, animations, and information on death and non-death losses
• Goals are to help autistic individuals navigate complex emotions and contextualize grief

Importance of addressing autism and grief:

• Emerging area of focus as more autistic individuals reach adulthood
• Opportunity to expand understanding of diversity in grief experiences

Benefits of the project:

• Provides support and validation for those grieving personal losses
• Establishes baseline understanding while respecting the uniqueness of each experience
• Spreads awareness of available resources for the autism community

Link mentioned in the episode: https://www.autismandgrief.org/
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