En iyi Young Onset Parkinsons Disease podcastleri (2024)

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4.6 Embracing Parkinsons 25:56

18d ago25:56

25:56

In this episode of Parkinson's and Me, Daniel Sellers introduces Frank, a long-time Parkinson's patient who was diagnosed in 2007. Frank shares his journey of living with Parkinson's for over 17 years, emphasizing the importance of maintaining a positive outlook. Despite experiencing personal tragedies, including the loss of his mother and wife to …

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139: An Update of the 988 Suicide and Crisis Lifeline: Interview with Tia Dole, PhD 8:31

2M ago8:31

8:31

Episode 139: In today's episode, I speak with Tia Dole, PhD, Chief 988 Suicide and Crisis Lifeline Officer, about updates to 988. We talk about how 988 provides services to Deaf and hard of hearing people, crisis support in Spanish, and the September 17, 2024 launch of geo-routing for T-Mobile and Verizon customers. We talk about how geo-routing is…

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4.5 Taking Notice 26:40

3M ago26:40

26:40

In this episode of "Parkinson's and Me," titled "Taking Notice," Daniel Sellers introduces the episode by highlighting the internal struggles associated with Parkinson's disease. He shares an inspiring conversation with his brother, Brian, who encourages and supports him in creating new episodes. Daniel reads and responds to emails from listeners, …

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4.4 Metaphorical Explanation 22:28

4M ago22:28

22:28

In the latest episode of "Parkinson's and Me," Daniel delves into the use of metaphors to convey his experiences and insights in managing life with Parkinson's disease. He begins by emphasizing the importance of continuing to live meaningfully despite the diagnosis. Daniel introduces four metaphors: "Building an Ark," "Our Second Half," "Taking the…

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138: Embracing Therapeutic Complexity: Interview with Patricia Gianotti, Psy.D. 41:17

5M ago41:17

41:17

Episode 138: In today's episode of the Social Work Podcast, I speak with Dr. Patricia Gianotti, author of the book, Embracing Therapeutic Complexity, and Academic Director of The Institute for Advanced Psychotherapy at Loyola University Chicago. Patricia and I speak about the neurobiology of shame, why depth work is important, and how to think abou…

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137: The Role of AI in Child Welfare and Community Organizing: Interview with ChatGPT-4o 31:02

6M ago31:02

31:02

Episode 137: In today's Social Work Podcast, I speak with ChatGPT-4o about the role of AI in child welfare and community organizing and how we can use Bronfenbrenner's ecosystems framework and an antiracist perspective. That's right. I'm interviewing OpenAI's LLM, ChatGPT-4o. This is the first time I've interviewed a chatbot. I'd love to hear your …

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4.3 A Day In The Life Of Part 2 20:50

6M ago20:50

20:50

In "Parkinson's in Me," Season 4, Episode 3, titled "A Day in the Life of Part 2," listeners are invited into the daily experiences of Daniel, a man diagnosed with early onset Parkinson's disease at 42. This episode continues the narrative from the previous one, offering a detailed and intimate portrayal of a day in Daniel’s life. He shares the nua…

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136: Living with Young-Onset Parkinson's Disease: Interview with Allan Cole, PhD 46:05

6M ago46:05

46:05

Episode 136: In today's Social Work Podcast, we speak with Allan Cole about his experiences with Young-Onset Parkinson's Disease. Parkinson's Disease affects nearly 1 million people in the United States and more than 6 million people worldwide. It is a a progressive neurological disorder that primarily affects movement. I spoke with Allan Cole, a p…

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4.2 A Day In The Life Of Part 1 20:59

7M ago20:59

20:59

In this episode of "Parkinson's and Me," Daniel shares a raw and personal account of his daily life with Parkinson's disease. He takes listeners through a typical day, starting from the moment he wakes up to his morning routine of medication, prayers, and exercises. Throughout the day, Daniel confronts the challenges posed by Parkinson's, such as m…

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4.1 Steal My Show 10:02

9M ago10:02

10:02

In Season 4 of his podcast, "Steal My Show," Daniel embraces a shift towards a more selfless outlook on life. He grapples with the decision to disclose his condition to colleagues and friends, acknowledging both the fear of potential consequences and the relief it may bring. Reflecting on the legacy he wishes to leave behind, Daniel finds inspirati…

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3.10 A Father With Parkinsons 20:01

1+ y ago20:01

20:01

The episode offers valuable insights into coping strategies and the importance of maintaining a positive outlook despite the challenges of Parkinson's disease. Daniel's concept of "speaking life" highlights the power of positive thinking and intentionality in shaping one's perspective. For those with Parkinson's or their loved ones, this emphasis o…

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Social Work Pioneer 4:12

1+ y ago4:12

4:12

I am humbled and honored to let you know that I have been selected as one of 25 Social Work Pioneers for starting the first podcast by and for social workers. The NASW Social Work Pioneers program celebrates some of the most influential social workers in the nation. There is no way I would have been considered for this prestigious honor had it not …

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3.9 Back From The Future 18:00

1+ y ago18:00

18:00

In this inspiring episode of the podcast "Parkinson's and Me," host Daniel, who was diagnosed with Parkinson's in 2019, shares his personal journey with the disease. Despite the challenges, Daniel has found a unique focus and determination. He shares his experience of stepping into a coaching role for his son's baseball team, a decision that has al…

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135: The Emotional Lives of Teenagers – Part 2: Interview with Lisa Damour, PhD 34:38

1+ y ago34:38

34:38

Episode 135: Today's episode is the second of a two-part series with Lisa Damour about her 2023 book, The Emotional Lives of Teenagers: Raising Connected, Capable, and Compassionate Adolescents. In today’s episode we talk about how decades of research on the gender binary can provide insight into the emotional lives of adolescents across the gender…

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3.8 Out Of The Shadows 26:36

1+ y ago26:36

26:36

Altering our perspective is a very difficult task. We have a lifetime of learned experience that dictates how we perceive life. For most of us, this includes some coping mechanisms that would not be described as healthy. This episode examines a few simple ways to reverse the cycle. As Yoda from Star Wars says, “You must unlearn what you have learne…

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134: The Emotional Lives of Teenagers – Part 1: Interview with Lisa Damour, PhD 31:38

1+ y ago31:38

31:38

Episode 134: Today's episode is the first of a two-part series with Lisa Damour about her 2023 book, The Emotional Lives of Teenagers: Raising Connected, Capable, and Compassionate Adolescents. In today’s episode we talk about the difference between adolescent distress and adolescent mental illness, how the COVID-19 pandemic made it more difficult …

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133: Eliminating the ASWB exam from the Illinois LSW law: Interview with Joel Rubin, LSW 27:33

1+ y ago27:33

27:33

Episode 133: In today's interview, NASW-IL Executive Director, Joel Rubin, and I talk about the legislative process that NASW-IL went through to eliminate the requirement that BSW and MSW graduates from accredited social work programs in Illinois had to take the ASWB licensing exam in order to get their LSW. Joel shares the story about how and why …

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3.7 Transitions 17:02

2y ago17:02

17:02

Continual transitions are a part of life. These combinations of our experiences combine to makes us who we are. One of the challenges living with Parkinson's Disease is the feeling of hopelessness. It's as if the walls are closing in on you, and there isn't a route for you to escape. However, what if you were able to change your perspective? How co…

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132: Loving someone with suicidal thoughts: Interview with Stacey Freedenthal, PhD, LCSW 32:54

2y ago32:54

32:54

Episode 132: In today's interview, Stacey and I talk about how she drew on her personal and professional experiences to write a book for families, friends and parents of someone who is suicidal. She talks about why and how families can create support teams, when and why it might not be appropriate to reach out to others, and how to navigate reachin…

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3.6 Romantizing The Past 15:59

2+ y ago15:59

15:59

The road ahead is full of incredible challenges. After the diagnosis of Parkison's Disease, it’s easy to push away the future and live in the past. It's important to realize that we remember only the best days while wearing our rose-colored glasses. We forget the average and mundane days and the anxiety that we were feeling. Living in the past keep…

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3.5 Hard To Rest 18:27

2+ y ago18:27

18:27

People with Parkinson’s disease (PD) often notice that their symptoms are worse when they are under stress. In addition to life stress, people with PD may experience anxiety as part and parcel of their PD itself, caused by chemical imbalances in the brain. Anxiety and stress are two different things, but can often manifest themselves in similar way…

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3.4 Speak Life 20:41

2+ y ago20:41

20:41

Receiving the diagnosis of Parkinson's Disease is difficult for everyone. We experience crushing disappointment that may lead us to isolate ourselves from those we care the most about. As a result, we jeopardize our present and future quality of life.Daniel and Bryan discuss the decision to speak words of compassion and encouragement that has benef…

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3.3 Greatest Challenges 11:05

2+ y ago11:05

11:05

In Episode 3.3, Daniel unpacks three of his greatest challenges to living well after being diagnosed with Young Onset Parkinson's disease. This episode is inspired by news regarding the medical community. The community is attempting to understand more about P.D. Specifically, what it's like being diagnosed while still needing to raise kids, taking …

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3.2 Evolving Expectations 20:04

2+ y ago20:04

20:04

We have a tendency to grow confident in our expectations as we grow older. Despite how hard we have prepared for the future, Parkinson's is similar to a bomb being dropped. It causes a titanic shift. When the smoke clears, we are left with a life that doesn't line up with our previous goals. Parkinson's doesn't discriminate based on gender or ethni…

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3.1 The Slow March Forward 23:42

2+ y ago23:42

23:42

For this season opener, Daniel has a conversation with his best friend. His wife. As a Care Partner, she sits on the front row of his life. She witnesses the effects that the progression of Parkinson's has on her husband. The couple has been married for nearly 20 years. In this episode, they discuss the important steps that need to be made to keep …

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2.12 Seasons Ending 20:46

3y ago20:46

20:46

This is the final episode for Season 2. We remove the script as Bryan, and Daniel has a casual conversation about the current season in Daniel's life. Looking back on 2021, Daniel shares his greatest encouragements and hardest difficulties having Parkinson's disease at such a young age. Daniel covers family, future, parenting, and the importance of…

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131: Feedback Informed Treatment: Interview with Scott D. Miller, Ph.D. 49:02

3y ago49:02

49:02

Episode 131: In today's episode, I speak with Scott Miller, Ph.D. about how we can use feedback to improve client outcomes. Scott is one of the developers of Feedback Informed Treatment, or FIT - an "empirically supported, pantheoretical approach for evaluating and improving the quality and effectiveness of behavioral health services. It involves r…

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2.11 Be Curious 19:10

3y ago19:10

19:10

Add your experience and suggestions to the conversation for this Parkinson's podcast. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us at parkinsonsandmepodcast@gmail.com or visit our site parkinsonsand.me The progression of P.D. chips away at the physical and mental fortitude of those unfortu…

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2.10 The Importance of Support 23:58

3y ago23:58

23:58

Daniel speaks with the leader of his Young Onset Support Group, Barbara Mooney. Barbara is the American Parkinson's Disease Association's Georgia Chapter Coordinator. She brings her experience to highlight the importance of joining a support group. Topics that are covered include: 1. Determining some of the greatest struggles for those with Parkins…

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Update 2:10

3y ago2:10

2:10

An update

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2.9 Trek to Mindfulness 25:26

3y ago25:26

25:26

Daniel returns to the podcast and shares the insight he gleamed with Bryan from taking his son on a trip to the western states of the U.S. The brothers discuss the negative effects that stress and rushing have on the effects of Parkinson's. For the episode, Daniel and Bryan cover how a mental disciple is at times the only defense to defend your emo…

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Apologies 1:36

3y ago1:36

1:36

Hate parkie

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2.8 The Spree of '83 23:36

3y ago23:36

23:36

Bryan hosts this episode that highlights how those who do not have Parkinson's can make an incredible impact on the lives of those afflicted with this horrible disease. Joining Bryan is the wife of legendary country songwriter Freddy Powers and the author of the book "The Spree of '83: The Life and Times of Freddy Powers", Jake Brown. If you haven'…

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2.7 Makes Me Who I Am 16:06

3+ y ago16:06

16:06

"I believe what I believe is what makes me who I am". In this episode, Daniel explains how the world of science and technical achievement is not enough to place our hope. Those with Parkinson's understand how little is known about how the brain works. There is so little that is understood about Parkinson's. Research does not always bear encouraging…

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Venting and my reaction to the diagnosis 8:33

3+ y ago8:33

8:33

Venting and my reaction to the diagnosis

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2.6 Letter To The Care Partner 26:41

3+ y ago26:41

26:41

Parkinson's disease not only affects the person diagnosed but drastically changes the life of the care partner. Often, the care partner's responsibility is placed upon our spouse. The care partner is one who works with the person with Parkinson's. They are part of the team as you continue to play an active role in your own health. The spouse's resp…

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Episode 10 | The Warrior Behind the Ninja, Cherryl Choi 36:41

3+ y ago36:41

36:41

This week we have the incomparable Cherryl Choi. Cherryl has been a YOPD carepartner for 18 years so she really knows what she’s talking about. She’s been through so much with her husband, Jimmy, and together, they have become a force in the YOPD world to be reckoned with. In fact, Jimmy encourages everyone out there with PD to go ahead and try. He…

1
Venting 2:10

3+ y ago2:10

2:10

Detour. Needed to vent

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Episode 9 | What Makes Your Heart Sing 34:47

3+ y ago34:47

34:47

What do you do when you work with patients with neurological illnesses all day to hearing your husband has Parkinson's disease himself? Meet Ellen Blake, an amazing wife and mother to 3 whose husband was diagnosed with PD at the age of 38. Ellen works in the field of neurorehabilitation and describes the juxtaposition of the similarities between he…

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Episode 8 | Parkinson's On the Rocks 51:26

3+ y ago51:26

51:26

Ever wonder what is the connection between rock climbing and Parkinson's disease? Molly Donelan, Director of Programs and Events at Sportrock Climbing Centers with two locations just outside of Washington, DC, gives us in-depth insight into this sport's benefits and challenges for the YOPD population. Molly's enthusiasm and dedication to climbing h…

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My diagnosis of Parkinson's disease 5:27

3+ y ago5:27

5:27

#yopd #sutapaisms #Parkinsons #parkie

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2.5 Trying to Communicate 18:35

3+ y ago18:35

18:35

As Parkinson's progresses, it complicates our ability to maintain relationships with others. This arrives in the form of facial masking and voice impairments. Facial masking affects the muscles of the face, mouth, and throat that causes problems with speech and swallowing. Signs of voice impairment include others commenting that you are speaking sl…

3+ y ago22:35

22:35

Often, the best source of information for those who have been newly or yet to be diagnosed comes from those who have lived it. In this episode, Bryan journeys back with Daniel a few years before he was diagnosed. Daniel had just turned forty. He was ready for the second part of his life. Listen as Bryan and Daniel discuss how life was like as a rel…

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