show episodes
 
No Silver Bullet is a group started by PwP for PwP, their carers, & PD Professionals, all of the firm belief that there is so much more that a PwP can do than just pop meds! We all get a different version of PD to deal with & as they say, "There is no one silver bullet to cure all!" So we hope by sharing expert’s research with you that something mentioned will help you! Please share this content VERY IMPORTANT MESSAGE:- Please be aware, we are not Doctors, Neurologists or PD Professionals, s ...
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The Parkinson’s Experience is a podcast hosted by a Person with Parkinson’s (PWP) and based on her daily experiences. Listen in on her journey living with the disease and how she lives her best life with humor, generosity, empathy and knowledge. Her conversations with experts and patients like you are fascinating and authentic. They cover relevant topics from DBS (Deep Brain Stimulation) to exercise to diet to medications to much more difficult subjects like personal relationships. Of the fe ...
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This is the official Podcast of PWPonderings.com. We are focused on bringing INDIE wrestling to everyone. Please check out PWPonderings.com for all of our written content and of course contact us at mailbag@PWPonderings.com with your questions or comments.
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show series
 
Dr Roberto Cilia spoke to us on the topic of "Mucuna Pruriens and the future of Parkinson's care in low income countries" There is much discussion by PwP as to the benefits of using this "natural " form of Levadopa as an alternative or in addition to prescribed Levadopa so it is very interesting to hear this presentation and the answers to the very…
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After the series on Art Therapy, I was reflecting on all the great stories of how each guest truly benefited from their experiences with their mode of creative expression. It isn’t just people with Parkinson’s benefiting. Everyone can benefit from attempting a new art activity or going back to what you used to enjoy. Then I started thinking what ha…
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We are delighted to be able to share with you our latest interview with Dr Filip Scheperjans who shared with us his fantastic work on "The importance of the gut-brain axis in Parkinson's" which was followed by an excellent Q & A session. More about our expert:- Dr. Filip Scheperjans is a leading expert in neurology, specialising in treating Parkins…
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I’ve had a wonderful time this summer speaking with people with Parkinson’s who have found joy, meaning and symptom relief using one or more forms of artistic expression - let’s call it art therapy. If you haven’t listened to the first three, please do. I found inspiration and information in each one. I hope you will as well. This is the fourth epi…
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Welcome to Part 3 of our series on the influence the Arts have on people with Parkinson’s and frankly most other conditions. It’s amazing what scientists are discovering about how much music, dance, painting, etc can be beneficial for brain health. I’ve been humbled by our guests. The more I listen to these amazing, brave people, the more I’m impre…
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Welcome to part two of our four-part series on the arts and Parkinson’s disease. If you haven’t listened to part one, you can definitely listen to this one but I encourage you to listen to part 1 on photography and hearing from our guest, Torrance York, who spoke passionately about photography and how it helps her gain perspective on her journey wi…
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So, I hope you enjoyed the first episode in our four-part series on the Arts and their potential for a better quality of life for people with Parkinson’s. We are going to take a quick brake in the series since this is the 100th episode of the Parkinson’s Experience. To celebrate and acknowledge he 100th episode, the interviewer became the interview…
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Prof Sonia Gandhi joined us to share her expertise on how Mitochondria affects PD with an excellent presentation followed by a very probing Q&A by our well informed audience. Prof Gandhi is a leading expert in the process of protein misfolding, in which smaller proteins, monomers, join together to form larger proteins, oligomers, and how this proce…
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This episode kicks off our 4-part series featuring people with Parkinson’s who found one form of the arts to be helpful with managing symptoms and gaining perspective. We will explore four different art disciplines – photography, dance, writing and music. We wanted to hear directly from the person with Parkinson’s rather than an expert on the resea…
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Last episode we spoke with a MDS and Assistant Professor at Vanderbilt University about integrative medicine. This episode is a great follow up to the previous one. This time it is student at the University of Cincinnati leading the charge to bring an integrated approach to Parkinson’s care. She formed a not-for profit organization called Parkinson…
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We had the pleasure of a presentation by Dr Jonathan Sackner-Bernstein, MD, on the topic of "Why I am optimistic that we might now have a Silver Bullet for Parkinson's", followed by a Q&A session of almost 50 probing questions from our audience. Dr. Jonathan Sackner-Bernstein is transforming the treatment of Parkinson’s disease (PD). First, he disc…
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What is integrative medicine and how is it different than what we are used to which is mostly silos of care and mostly Western medicine? My guest today will offer an alternative to this, a better way to treat a patient with a condition or disease. Dr. Britt Stone, an Assistant Clinical Professor at Vanderbilt Medical Center, spent her pandemic time…
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In April 2010, Allison (Allie) Toepperwein experienced a tremor in her left hand while living in Austin, Texas after giving birth to her daughter. Around eight months later, in December 2010, Steven Eury noticed a tremor in his right hand while filming the birth of his son 1100 miles away in North Carolina. The following year, Steven received a dia…
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What stage are you in? Do people ask you that question? If so, do you tell them? Do you even know? What are the stages and what do they mean? Frankly, I have never asked my movement disorder specialist neurologist what stage I am in. I don’t know why. We have never discussed it. However, learning and knowing more about how your doctor is tracking t…
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Earlier this season on episode number 088 titled “the Skinny on Skin” we learned about the various skin disorders that can manifest in people with Parkinson’s. Well, on the flip side, the skin is the largest organ in our body. It must hold all kinds of secrets to our health. It turns out alpha-synuclein gets deposited in the skin of patients with s…
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We had the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide recognised leader on Parkinson’s disease, is the distinguished Professor of Neurology and Director of the Norman Fixel Institute for Neurological Diseases at the University of Florida Health. …
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What do you know about your gut? In the last several years, research has led us to a more detailed understanding of the role of the gut – which includes the stomach, intestines, and colon. This isn’t your father’s understanding of the gut. So, what does the gut have to do with it? It being the possible cause of many diseases including Parkinson’s d…
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We were delighted to host Dr Michelle Sexton who presented on the topic of "How can medical cannabis help people with Parkinson's" and here is the recording of the event. About the speaker:- Dr. Sexton is an integrative medicine specialist and respected pioneer in the field of medical cannabis. She has over thirty years of experience as a midwife, …
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The topic today is one of those difficult to discuss symptoms that most of us try to avoid and deal with it on our own. Not a great idea. So, let’s learn about and discuss our bladders. You might have an overactive one which is also referred to as hyperactive or underactive one also referred to as hypoactive. Unfortunately, the probably of anyone h…
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In this exclusive interview with Joey Janela, I sit down with him to talk about his upcoming WrestleMania weekend plans. We also speak about his upcoming match with Megan Bayne that will be airing on Sunday via IWTV on the Beyond Wrestling "Shamrock Slam" show. We also speak about his opinion on intergender wrestling, what's next for him, his infam…
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Welcome to the third episode in our three-episode series on exercise. During the process of researching for this episode, I have found more and more studies showing that exercise does help reduce symptoms of PD. Very exciting to be able to take control of your journey by including certain exercises in your day and week. My guest today, Dean Laws, d…
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Welcome to part two in our series on exercise and how it has been proven to reduce the symptoms of PD. As one of my guests, Dr. Daniel Corcos, explains, “It is crystal clear, exercise slows the progression of Parkinson’s.” In this episode, Kristine Meldrum and Dr. Corcos, authors of the book “Parkinson’s: How to Reduce Symptoms Through Exercise,” c…
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We were delighted to host Prof Christine Klein who talked to us about "The importance of genetics in finding a cure for Parkinson's". It was a really interesting presentation and followed by a very good Q&A with excellent questions from you our audience, so thank you. It is now a very worthwhile Podcast and video (on our YouTube Channel https://www…
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OK, I know what you are thinking. Another exercise episode, really? Yes, but this isn’t your run of the mill plead for people with Parkinson’s to exercise more. Up until now, we have been told to exercise but not given any direction on which exercises are best for us. Recently friends recommended a book that is filling this deficit. It is based on …
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Did you know that people with Parkinson’s disease have a higher risk of developing certain skin disorders than the rest of the population including melanomas? Have you had a skin issue pop up on you and not know what it is or how you got it? There is a good chance you were experiencing a manifestation of the Parkinson’s disease process or a side ef…
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My guest from the last episode on Nutrition, Debbie Polisky, is back to talk about stress and stress management. Research has shown stress can reduce a person’s life expectancy. How many years are we losing is determined by other factors and lifestyle choices. However, I am pretty sure everyone experiences stress in their lives so this episode is i…
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We are excited to share our latest interview with you all, in which Dr Raul Martinez- Fernandez explains the therapy of Focused Ultrasound, a therapy that offers appropriate candidates with an alternative to the more intrusive DBS. It is of course not a replacement for DBS, simply an alternative offering a solution for those with differing symptoms…
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It’s our first episode of 2024. How many of you have already stopped working on your New Year’s resolutions? History would suggest most people fail early. Some of you probably are striving to eat better for your Parkinson’s health and for your overall health. Therefore, it is the perfect time to discuss nutrition and diet. My guest is a dietician w…
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It’s a two hour jumbo sized edition of the show this week as Jerome Cusson is talking to a smorgasbord of guests on the show. First, it’s Dave Prazak and Allison Danger talking all about Shimmer, which is forthcoming this Saturday and Sunday afternoon/evening in Berwyn, Illinois. Then Tom Green talks the first ever School of Roc show taking place i…
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We are delighted to host Dr. Simon Stott again in what is becoming our regular start to the year's presentations. And what better way than to hear Dr. Stott's main PD research takeaways from 2023 and research results he will be looking for in 2024. For those of you who are unfamiliar with Dr. Stott's work, Dr Stott is the Director of Research at Cu…
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Well, I can’t believe we find ourselves at the end of 2023. Where did the time go? I hope you had a good year. It was a fantastic year for Parkinson’s research and for this podcast. We witnessed a breakthrough in the study of PD with the discovery of a biomarker and how to test for it. That is a game changer. And this is my 85th episode of the Park…
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This episode is about communication via your voice. Are you being heard? Speech issues is one of those symptoms People with Parkinson’s most likely will need to address as part of the journey with this disease. Does Siri or Alexa understand you? Is it frustrating to use these smart voice assistants? Well, my guests are working to change all of that…
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When you or a loved one has a chronic condition, where do you go to find support, information and your “community”? People with Parkinson’s may not all have the combination of symptoms, but we are all better off when we seek out and find others like us who will be there for you and lift you up. I am grateful to have found a couple groups that have …
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