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Lia Paulina Cruz Rivera, 7, infantile myofibromatosis, Woonsocket, RI, with Julibeth, her mother
Manage episode 434212527 series 2447275
In January 2018, at 8 months old while living in Puerto Rico, Lia suddenly lost movement and sensation from her hips down. She began treatment in Puerto Rico, but their experience wasn't the best, and one of the doctors told Lia’s mom that her tumor was very rare. Her mom conducted research and learned that Dana-Farber was one of the best places to be treated.
Lia is in a clinical trial for the second time. Oral medication twice a day, the same medicine/treatment she used from 2018 -2020.
Julibeth has no words that can describe what Lia has been through, but Lia is always excited when she knows she's having an appointment, she feels safe, she feels happy, and for the entire family seeing her like that make them happy. The Jimmy Fund
Clinic is her special place, around people that love, care and always want what is best for her and her family.
Lia loves to draw, paint, dance, play pretend, Bluey, and unicorns. · Lia will be saying “Play Ball” at tonight’s game.
500 bölüm
Manage episode 434212527 series 2447275
In January 2018, at 8 months old while living in Puerto Rico, Lia suddenly lost movement and sensation from her hips down. She began treatment in Puerto Rico, but their experience wasn't the best, and one of the doctors told Lia’s mom that her tumor was very rare. Her mom conducted research and learned that Dana-Farber was one of the best places to be treated.
Lia is in a clinical trial for the second time. Oral medication twice a day, the same medicine/treatment she used from 2018 -2020.
Julibeth has no words that can describe what Lia has been through, but Lia is always excited when she knows she's having an appointment, she feels safe, she feels happy, and for the entire family seeing her like that make them happy. The Jimmy Fund
Clinic is her special place, around people that love, care and always want what is best for her and her family.
Lia loves to draw, paint, dance, play pretend, Bluey, and unicorns. · Lia will be saying “Play Ball” at tonight’s game.
500 bölüm
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