283. Navigating Tube Feeding With Down Syndrome (w/Dr. Lauren Fiechtner)

The Lucky Few

Nutrition is key to a child's development, but for some children with Down syndrome, feeding challenges make it difficult to get the nutrition they need. That’s where tube feeding comes in. Today, we’re chatting with Dr. Lauren Fiechtner, Director of Nutrition at Mass General for Children, to talk about the different types of feeding tubes, why they are sometimes necessary, and the unique feeding challenges that children with Down syndrome may face. We’re chatting about when tube feeding is typically used, the emotional and physical challenges parents may experience, and how feeding therapies and supportive resources can make a difference. We hope Dr. Fiechtner’s compassionate advice helps families feel empowered and reassured as they navigate tube feeding and nutrition.

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SHOW NOTES

• Learn more about Feeding Matters

• Learn more about The Oley Foundation

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THANK YOU TO OUR SPONSORS:

Thank you, National Down Syndrome Society for sponsoring this episode!

• Check out episode 174 on The Down Syndrome Learning Profile

• Check out episode 181 with NDSS team member Dana Sciullo and her brother Anthony!

• Check out episode 262 with NDSS President Kandi Pickard celebrating their 45 years of advocacy!

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

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