Living with Purpose: Stew’s Journey with ALS and the Power of Meaningful Connections

The Independent Life

In this heartfelt episode of The Independent Life, Tony welcomes his longtime friend, Mark Stewart—or as Tony and close friends call him, "Stew." Stew was recently diagnosed with ALS, a progressive and terminal neurological disorder. With courage and clarity, Stew shares his journey, reflecting on what it's like to process this life-altering diagnosis, and the wisdom he's gained in learning how to live meaningfully with the time he has left.

Thirty years of friendship have shaped Tony and Stew’s bond, and a recent canoe trip inspired Tony to invite Stew to share his journey on the podcast. They delve into Stew’s experience of his diagnosis, his reflections on living with purpose, and the lessons he's embraced about time, relationships, and resilience. Despite the progression of ALS, which affects his ability to speak and move, Stew’s perspective shines through powerfully as he shares how he navigates his roles as a husband, father, and friend.

As a father to a daughter with Autism, Stew shares his insights on supporting her unique needs. Despite the prognosis, Stew’s perspective remains rooted in positivity. He talks about the necessity of focusing on constructive thoughts and showing up for the people who matter most, advocating for a life focused on rich, meaningful relationships.

Stew’s wisdom is a powerful reminder: life is an ongoing cycle of learning, letting go, and building strong connections. He encourages listeners to find "their people," detach from social perceptions, and seek joy in each day, even as he rides the waves of his own journey. This episode is a moving testament to resilience, love, and the legacy of kindness and compassion we each have the chance to leave behind.