Aubrey Christmas, patient advocate

The Health Design Podcast

Aubrey is a patient advocate for TTR Amyloidosis, a rare condition for which he was diagnosed in 2013 with the hereditary type strain. Aubrey takes pride in providing support to other amyloidosis patients despite the trauma and challenges he faces as a sufferer. His extraordinary commitment to making a positive change in diagnosis and treatment allows him to take the focus away from his pain and turn it into something that would benefit others. Patient engagement and voice in healthcare, research, and social welfare are areas that need improvement. There has never been a more critical time for patients like him to advocate and play their part in driving change.