Madelyn's Journey with POTS and Ehlers-Danlos Syndrome

Rights Upfront

In this episode I meet Madelyn, a 21-year-old advocate from Minnesota, bravely living with postural orthostatic tachycardia syndrome (POTS) and Ehlers-Danlos syndrome (EDS). Madelyn shares her intimate battle with these invisible chronic illnesses, revealing the day-to-day adversities she overcomes and the triumphs that define her resilient spirit.
Listen to Madelyn discuss the stigmas surrounding mental health, the overlooked hardships within the education system, and the financial burdens of managing chronic illness in America. With profound courage, she talks about embracing mobility aids as tools of independence, not defeat, and advocates for policy reform to better support those living with chronic conditions.
This episode not only shines a light on Madelyn's individual story but also celebrates the victories and sense of community found within the broader chronic illness and disability sphere. Discover how role models and public figures in the disability rights movement have fueled Madelyn's strength and her dedication to fostering inclusivity and belonging.
Madelyn's advice to allies of the disabled community is invaluable, emphasizing empathy, action, and the importance of inclusive representation. Her narrative is a testament to the transformative power of hope and an invitation to listeners to join the conversation and support the cause. Tune in to be moved, educated, and inspired to act.
#ChronicIllness #DisabilityAdvocacy #InvisibleDisabilities #Resilience #Community #PolicyReform #Empowerment