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İçerik PWSA | USA tarafından sağlanmıştır. Bölümler, grafikler ve podcast açıklamaları dahil tüm podcast içeriği doğrudan PWSA | USA veya podcast platform ortağı tarafından yüklenir ve sağlanır. Birinin telif hakkıyla korunan çalışmanızı izniniz olmadan kullandığını düşünüyorsanız burada https://tr.player.fm/legal özetlenen süreci takip edebilirsiniz.
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Pulse 108: Prepare for Holidays, New Staff, Operation Holiday Cheer, & More

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Manage episode 444207074 series 3594946
İçerik PWSA | USA tarafından sağlanmıştır. Bölümler, grafikler ve podcast açıklamaları dahil tüm podcast içeriği doğrudan PWSA | USA veya podcast platform ortağı tarafından yüklenir ve sağlanır. Birinin telif hakkıyla korunan çalışmanızı izniniz olmadan kullandığını düşünüyorsanız burada https://tr.player.fm/legal özetlenen süreci takip edebilirsiniz.

The latest in PWSA news, research, fundraising, family support, advocacy, and more. Be sure to check out the links!

LINKS

Our Staff - Prader-Willi Syndrome Association | USA (pwsausa.org)

Halloween Fun for Everyone - Prader-Willi Syndrome Association | USA (pwsausa.org)

Celebrate Thanksgiving Safely - Prader-Willi Syndrome Association | USA (pwsausa.org)

Celebrate Holidays Safely - Prader-Willi Syndrome Association | USA (pwsausa.org)

Share Your Halloween Tips and Tricks for PWSA | USA's PWS United Podcast - Prader-Willi Syndrome Association | USA (pwsausa.org)

Hope for the Holidays - Prader-Willi Syndrome Association | USA (pwsausa.org)

Share Your Story - Prader-Willi Syndrome Association | USA (pwsausa.org)

Arizona Grand Resort & Spa - Reservations - Room Availability Search (synxis.com)

Home - 2025 United in Hope PWS Conference (cventevents.com)

2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA (pwsausa.org)

Inaugural RMC Foundation Golf Outing: Jen Garzia Speech (youtube.com)

Dance Silly for Prader Willi T-Shirt - Prader-Willi Syndrome Association | USA (pwsausa.org)

Events from October 11 – June 24, 2025 – Prader-Willi Syndrome Association | USA (pwsausa.org)

New England Prader Willi Conference Tickets, Sat, Nov 2, 2024 at 8:30 AM | Eventbrite

The Many Factors of Independence - Prader-Willi Syndrome Association | USA (pwsausa.org)

Spreading Joy: Operation Holiday Cheer Returns to Support PWS Families in 2024 - Prader-Willi Syndrome Association | USA (pwsausa.org)

Ask Nurse Lynn: Bowel Movements and Picking - Prader-Willi Syndrome Association | USA (pwsausa.org)

TREND Webinar Registration - Zoom

Update on Phase 3 COMPASS PWS Study from Acadia - Prader-Willi Syndrome Association | USA (pwsausa.org)

Project Echo - Prader-Willi Syndrome Association | USA (pwsausa.org)

Prader-Willi Syndrome Association - YouTube

africke@pwsausa.org

  continue reading

16 bölüm

Artwork
iconPaylaş
 
Manage episode 444207074 series 3594946
İçerik PWSA | USA tarafından sağlanmıştır. Bölümler, grafikler ve podcast açıklamaları dahil tüm podcast içeriği doğrudan PWSA | USA veya podcast platform ortağı tarafından yüklenir ve sağlanır. Birinin telif hakkıyla korunan çalışmanızı izniniz olmadan kullandığını düşünüyorsanız burada https://tr.player.fm/legal özetlenen süreci takip edebilirsiniz.

The latest in PWSA news, research, fundraising, family support, advocacy, and more. Be sure to check out the links!

LINKS

Our Staff - Prader-Willi Syndrome Association | USA (pwsausa.org)

Halloween Fun for Everyone - Prader-Willi Syndrome Association | USA (pwsausa.org)

Celebrate Thanksgiving Safely - Prader-Willi Syndrome Association | USA (pwsausa.org)

Celebrate Holidays Safely - Prader-Willi Syndrome Association | USA (pwsausa.org)

Share Your Halloween Tips and Tricks for PWSA | USA's PWS United Podcast - Prader-Willi Syndrome Association | USA (pwsausa.org)

Hope for the Holidays - Prader-Willi Syndrome Association | USA (pwsausa.org)

Share Your Story - Prader-Willi Syndrome Association | USA (pwsausa.org)

Arizona Grand Resort & Spa - Reservations - Room Availability Search (synxis.com)

Home - 2025 United in Hope PWS Conference (cventevents.com)

2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA (pwsausa.org)

Inaugural RMC Foundation Golf Outing: Jen Garzia Speech (youtube.com)

Dance Silly for Prader Willi T-Shirt - Prader-Willi Syndrome Association | USA (pwsausa.org)

Events from October 11 – June 24, 2025 – Prader-Willi Syndrome Association | USA (pwsausa.org)

New England Prader Willi Conference Tickets, Sat, Nov 2, 2024 at 8:30 AM | Eventbrite

The Many Factors of Independence - Prader-Willi Syndrome Association | USA (pwsausa.org)

Spreading Joy: Operation Holiday Cheer Returns to Support PWS Families in 2024 - Prader-Willi Syndrome Association | USA (pwsausa.org)

Ask Nurse Lynn: Bowel Movements and Picking - Prader-Willi Syndrome Association | USA (pwsausa.org)

TREND Webinar Registration - Zoom

Update on Phase 3 COMPASS PWS Study from Acadia - Prader-Willi Syndrome Association | USA (pwsausa.org)

Project Echo - Prader-Willi Syndrome Association | USA (pwsausa.org)

Prader-Willi Syndrome Association - YouTube

africke@pwsausa.org

  continue reading

16 bölüm

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