Joe Sooch, patient advocate.

The Health Design Podcast

Joe Sooch here. I have a rare disease called FOP where my muscles turn into bones literally I was born with all my limbs working normally with free range. As I get older, I’ll get swellings all over my body and bones just start forming the bones grow and locks my body into place permanently. I can get surgery or more bones will grow. My DNA is faulty so there is nothing any doctor can do to help. I am stuck like this permanently and just have to deal with it. https://www.instagram.com/joeysooch/ https://www.youtube.com/watch?v=_5P2U05uTfY&t=524s Wedding vlog https://www.youtube.com/watch?v=L-JLGt1R_RA&t=496s Follow me on instagram! https://www.instagram.com/joeysooch/ Proof https://www.instagram.com/p/CSzILlaLhor/?utm_source=ig_web_copy_link More proof https://imgur.com/a/8fTzUcZ https://www.dailymail.co.uk/video/health/video-1165043/The-boy-turning-stone-The-story-Joey-Sooch.html