This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...

The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...

A series of eclectic mixes from my vinyl record collection- check for regular updates and downloadable classics.

The Culture's favorite podcast . Hosted by Rolo Rozay and Hake$y.

General talking of jujitsu jokes movies , music health and mind set ,fitness normal chit chat also looking at my record collection and living in my local community chatting to friends and the wife at some point and anyone who drops in at my secret matted training area The Ninja Loft . .

The Rare Possessions Podcast digs into the Scripture Central Library to find valuable works that focus on the Book of Mormon and other Restoration scripture.

Rare in Common is a podcast about the unique stories of people affected by rare disease. Host Andra Stratton, a rare disease advocate, speaks with different members of the rare disease community, including patients, caregivers, healthcare professionals, and researchers. Join us as we tackle topics such as FDA approvals, national awareness campaigns, finding hope and support within the rare community, and the extraordinary challenges of living with a rare disease. Click. Listen. Feel.

Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other. P.S. we are not a glum lot!

Intended to build a community of creative female entrepreneurs, best friends and kindred spirits Abbi and Lydia cultivate space for candid conversations about pursuing dreams, owning businesses, balancing work and family life, and living out creative passions. You can expect vibrant, heartfelt, and authentic conversations between this vivacious duo and their occasional guests. We are all created to create and The Rare Collective podcast explores all that this truth entails.

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...

Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com

South Jersey #1 One Man One Sound Podcast. New Episodes every 1st & 15th of the month

On “Rare Insights” we bridge the gap between those living with rare diseases and the biopharmaceutical industry. Know Rare amplifies the voices of individuals with rare conditions, providing invaluable perspectives to accelerate therapeutic solutions. Join us as we dive deep into the complexities of rare diseases, exploring real-world insights from passionate industry leaders. Together, we navigate the unknowns and unlock the potential for groundbreaking treatments. Because in this journey, ...

Located in Los Angeles, Norman’s Rare Guitars is a retail store that offers a wide and often changing variety of new, used, and vintage guitars. It is a household name among top musicians and players worldwide. The allure of the store may start with the guitars, but to quote Norman's "nephew" Joe Bonamassa, "you don't buy a guitar, you buy a story." Join Norman and all of his buddies -- some of the world's best professional musicians and industry greats -- as they stop by to talk with Norm a ...

I want to share information about living with and dealing with a chronic or invisible disease. This is made even more difficult if the disease is rare. I'll share my story and also invite some guests to share their viewpoints and experiences. There are hundreds of different types of diseases out there that are invisible and can the sufferer feel more alone. I'm hoping to help the patient, families and other support systems better communicate and empathize with each other. ***Disclaimer - Thi ...